Bernice Elger – Ethical issues in governing biobanks: Global perspectives

Publisher: Ashgаte Ð*ublishing | 2008 | ISBN: 0754672557 | PDF | 257 pages | 1.06 MB

Population genomics research drawing on genetic databases has expanded rapidly in recent years. In some cases, this information has been combined with details on individuals’ health, lifestyle or genealogy. Protecting the data available from such databases has consequently emerged as a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to discuss the development of an international regulatory framework to provide practical guidance.

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